Community

We warmly welcome you to Our Online Community

Register or login below to get started with Our Online Community.

Login

Register

posted by Iamstrong
30 January 2021

Post mastectomy and chemo

Last reply: 04 February 2021 14:00
Hello all, so I had 2 small tumors and pre cancer cells. Tumors were 8mm and around 1cm. My lymph nodes were clear. I had my mastectomy in Oct 2020 and just finishing up chemo soon (4 rounds of TC). No radiation as margins were clear etc. Lately I've been feeling my mastectomy scar if that makes sense and I have shoulder and arm pain. Not severe but it's there. I've been assured my cancer is gone but my mind is not in a positive zone and so I'm imagining all sorts. What have other peoples experiences been post mastectomy and chemo? Am I nuts or should I worry? Thank you
1 comment
Read the post
posted by sunflower
16 August 2012

Teeth falling apart

Last reply: 24 January 2021 15:35
Over the last few months my teeth have been falling apart. Has this happened anyone else? I had 6 months of chemo and 33 sessions of RT. Finished this last year. It has been a bit of a shock as I look after them!! Sunflower
3 comments
Read the post
posted by just_me
25 August 2020

Waiting for results

Last reply: 20 January 2021 12:07
Hi... I had a swollen lympnode biopsy last week and tomorrow I'm a having a core biopsy because of suspicious calcifications. I know nobody can tell me the answer I really want to hear but has anyone any experience of the both?
1 comment
Read the post
posted by LisaJH
07 January 2021

Hot Flushes / menopause

Last reply: 12 January 2021 00:07
I am 43and have stage 2 breast cancer, I just finished chemo last Monday. I haven’t had a period for months which I was told to expect and have been experiencing intense hot flushes and night sweats for about a month. While I know chemo is the cause of this, I’m just wondering if it will continue now I am not on chemo anymore or if the menopause I’m starting will reverse itself? Has anyone had any experience of this?
4 comments
Read the post
posted by Siobhan S
17 November 2020

Stage 4 Breast Cancer

Last reply: 29 December 2020 11:26
Hey, Hope all are doing ok. Found out yesterday my breast cancer is now at Stage 4. I dont know what to do or how yo feel! Found a breast lump in June. Pre op scans threw up a query which docs were happy to check again after 3 months. Had a mastectomy and complete auxiliary clearance in Sept. My chemo is to start next week. I recovered really well post mastectomy and have been getting with life, getting walking and looking forward to getting back to work after chemo. The repeat bone scan has confirmed a lesion on one of my ribs so now I have gone from Stage 2 to Stage 4 overnight. Now i feel it's all up in the air again! It's like I'm living someone else's life, it's weird. Anyone out there similar story that can share their experience? Thanks S
3 comments
Read the post
posted by Vision
19 December 2020

Onkotype test

Last reply: 23 December 2020 17:01
Hi I was wondering if anyone has had a Onkotype test done as part of breast cancer treatment
2 comments
Read the post
posted by BM
18 December 2020

Recurrence in underarm lymph node

Last reply: 23 December 2020 13:13
Hi I never posted in anything before so here goes, I was diagnosed 6 years ago with dcis with mi, sentinel node clear, I had a mastectomy and no other treatment. I've had pain in mastectomy side on and off but since August it got worse. My gp sent me for an ultrasound in breast clinic. The radiologist seen a swollen lymph node and done biopsy. Got the results Tuesday, cancer cells in node. I had a ct and bone scan since, I'll get results Tuesday. Has anyone had anything similar. Im so scared. Thank you
1 comment
Read the post
posted by VC
14 December 2020

Awaiting appointment.

Last reply: 21 December 2020 11:57
Hello, I went to my GP with a small lump in my right breast and a referral was sent to the Mater Hospital clinic for review. I have been waiting 10 weeks now for an appointment and told there are delays because of Covid19. In the mean time a larger lump has developed in my left breast and I have noticed my breast is larger and feels heavy. I cannot lie on my front due to pain in both breasts. I am wondering if I should revisit my GP or continue to wait for an appointment? Also, during the clinic visit will both breast be reviewed or just the one on the referral? Kind regards.
4 comments
Read the post
posted by LadyLily
06 December 2020

Starting Tamox post-surgery

Last reply: 11 December 2020 09:44
Hi all, I have recently gone through the whole diagnosis and surgery element of breast cancer. I was fortunate enough to have caught it early after a screening and was told I had a 2mm tumour removed. Thankfully it wasn’t in my lymph nodes. I am still finding my feet about information on post-surgery with radiotherapy and treatment. I have just began Tamox 20mg and am quite scared with how many side effects are listed on the patient information leaflet. I’d really love to hear from others who have or still are going through the treatment and see real stories about the drug. If anyone also has any tips on dealing with treatment day-to-day I’d be so happy. It’s been a scary few months and I am trying to stay positive but it is hard. If anyone could give me an insight, I’m keen to hear your stories 💗 sending best wishes to all of you through these times
1 comment
Read the post
posted by CMarvelJ
15 November 2020

Pre-Existing Endometriosis and Hormone Treatment

Last reply: 03 December 2020 13:57
Hi all, It is 18 months since I was diagnosed with Breast Cancer (Triple Positive). A mastectomy (Including lymph node clearance) in May 2019, Chemo (AC and Taxol), Radiotherapy and Herceptin all behind me. Each of these was a challenge, however the biggest unexpected challenge for me is Tamoxifen. I have a history of Endometriosis which had calmed down, however when I started Tamoxifen in August it triggered the worst symptoms of Endometriosis I ever had within a matter of days. This was only addressed through stopping the course as agreed with the Oncologist. It hasn't gone away, but it is manageable. I am 48 years old and in peri-menopause. I am at a crossroads and I have no idea where I go from here. When I look up alternatives to Tamoxifen all I can find is solutions for Women who are post menopause. I cannot go through the pain again, there is no point in taking a medication if the side effects are impossible to live with, for me it was worse than the chemo. I am hoping that somebody out there has been on similar journey and has some advice, some information that can help me understand a way forward, before I meet my Oncologist in a weeks time. Many Thanks
1 comment
Read the post
© Irish Cancer Society 1999-2025 All Rights Reserved

Irish Cancer Society Head office, 43/45 Northumberland Road Dublin, D04 VX65; Charity Regulatory Authority No. 20009502; Revenue Number CHY5863; Company Number 20868.