follicular non Hodgkin's lymphoma

November 28, 2013 - 17:07

I'm new here and wanted to say hi.
I got diagnosed with follicular non hodgkins lymphoma in September 2013. I'm a 34year old female. The diagnosis felt like a slap on my face .
I'm worried of course.
I have so many questions (Google is not helpful. It scares me)
Is there anybody else here with the same cancer who would like to talk?
Take care,

December 6, 2013 - 15:18

Dear Justy
I am sorry to see that you have not had a reply to your post. If you would like to speak to somebody who has had Non-Hodgkins Lymphoma we can arrange that through our Peer to Peer support group but you would need to phone our National Cancer Helpline at Freefone 1800 200 700 to arrange this. I am attaching a link about this and other services,you might find helpful
Kind regards
Cancer Information Nurse

July 6, 2017 - 14:36

Hi, I know it's 4 years since your post but I have only joined now. I was diagnosed with follicular in Nov 2011. How are you getting on?

January 9, 2019 - 20:54

Hi guys
I have only just joined was doagnosed with NHL in September 2017, still finding it hard to cope and the thoughts of the watch & wait is very scary. Im undergoing immunotherapy at the moment. I sometimes feel like my consultant doesnt understand like when i tell him about the pain in my abdomen he never seems too concerned or gets this look of confusion and it sometimes feels like he maybe thinking im making it up. Am i going crazy or has anyone rlse experienced this?