Newly diagnosed
posted by Nettes
30 July 2019

Bile Duct Cancer

Last reply: 1 day ago

My mother was diagnosed last Thursday with Bile Duct cancer which has spread to her liver. The diagnosis took two weeks and now we're waiting to hear from the oncologist in the Mater hospital for her first appointment. I suppose it was naive of me to think if somebody was diagnosed with cancer then the next step would come quite quickly, does anybody know how long it usually takes before you see the oncologist?

From what we gathered in the Liver clinic the cancer in inoperable and next step will be chemo but we haven't been given much information. She's had a stent put into her bile duct to clear the jaundice over two weeks ago but since last week she's been getting weaker and weaker, sleeping a lot and not eating. I came home from work this evening and she's gone yellow again.

I'm unsure what I should do next, is waiting for a week to hear back after diagnosis pretty standard? Should I be calling the hospital to let them know her symptoms? I'm in limbo right now and unsure of what the next step should be. Any direction would be greatly appreciated.

Apologies for the rambling, I'm still a bit all over the place with this.

2 comments

Comments

commented by Irish Cancer Society
09 August 2019

6 months ago

Dear Nettes, Thank you for your post, I’m sorry to read of your mothers diagnosis, it must be a very difficult time for you and your family. We would recommend contacting your mother’s doctor or their nurse specialist, they are in the best position to answer when she will start her treatment and what the plan is. If you have concerns about her health or her symptoms you could contact her GP or her doctors in the Mater, they are in the best position to provide advice about your concerns. The Nurseline is available on 1800200700 if you would like to speak with a nurse for any support or advice. I hope this is helpful, Kind Regards

commented by Rebecca38
20 February 2020

1 day ago

My dad had bile duct cancer he had the Whipple procedure in st Vincent hospital they might do something like that for your mum also but do speak to her docs and find out what the options are take of yourself and your mum

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