Drug reimbursement, how does it work
Hi, I was diagnosed a long time back with head and neck cancer and it has metastized, however, it was not squamous cell carcinoma but clear cell carcinoma.
My understanding is that this cancer type, rare as it is, is more commonly found in the kidney.
I constantly review different treatment options out there but thus far nothing has worked for me.
Latest update I have found is that a combination of Nivolumab (Opdivo®) with ipilimumab (Yervoy®) seems to have best response for RCC. (Renal Cell Carcinoma)
My query is this, looking at the HSE approved list of drugs, this combination is approved for use in patients with Renal cell carcinoma, and it's also approved for head and neck patients with squamous cell carcinoma
So, my head and neck is not squamous cell carcinoma, so I guess that rules me out on that basis, and even though my cancer is more associated with RCC, I am also ruled out of this combination treatment because my cancer is head and neck even though it's more commonly part of RCC.
Can someone please advise what are my options here and if I have this right.
I have tried taxol and platin, that combination didn't do anything, also tried sunitinib, which also did nothing, I am now on Xeloda.
Should this latest treatment not do anything then I want to raise the possibility of Nivolumab (Opdivo®) in combination with ipilimumab (Yervoy®) with my consultant, but want to know if it's reimbursable for my particular case.
Would appreciate any help from anyone out there who might know more on this subject.