Anyone reading this who is also caring for a loved one with a gbm4 diagnosis?
It's heartbreaking to watch, in my case it's my husband and best friend. He's my hero. The rapid growth of his tumour in just a month left him in a wheelchair with no mobility on his left side. I am lucky to have home help, I wouldn't survive without it. The hardest thing now is preparing myself for life without him. I have some idea of what to expect as he declines, I can already see a dip in his strength and memory loss returning. He has had 6 weeks of radiation and chemo. That finished at the start of August. The uncertainty is difficult.. No one can tell you when major changes will happen. I pray for the strength to keep smiling for him and I thank God for every day. I miss him already as the disease robs more of his personality, at least he is not in pain. All he wants is to wiggle his toes, and of course stand up and walk. Maybe today I can make him smile. Small steps.