Leukaemia, myeloma, lymphoma (blood cancers)
posted by Terry Kav
18 December 2018

polycycthemia vera

Last reply: 9 months ago

Im looking to talk to someone else with polycycthemia vera.



commented by Irish Cancer Society
20 December 2018

4 years ago

I am sorry nobody has replied to you yet but hopefully someone with a polycythaemia vera will get back to you shortly. I am attaching a link to MPN voice a UK web site with information and advice that you hopefully will find useful : http://www.mpnvoice.org.uk/about-mpns/questions-about-mpns/polycythaemia-vera.aspx

Also you can call us on the Nurseline on 1800 200 700, we would be happy to speak to you.

Kind Regards

Cancer Nurse | Irish Cancer Society.
Cancer Nurseline Freephone 1800 200 700


commented by Stephen D
18 February 2022

1 year ago

Sorry to reply to your post so long after you made it but I was just diagnosed with PV and am in the process of beginning treatment. Would be more than willing for a chat if you are still active on this. Kind Regards.

commented by Gavin
02 May 2022

1 year ago

Hi Terry,

Not sure if I can assist you in any way, however I've been diagnosed with PV during the pandemic. If you want to reach out please do.

commented by Trevor Ryan
18 September 2022

1 year ago

Hi im trevor diagnosed few months ago but the doctors say I've probly had pv 8 years now im up for a chat if you like

commented by Shauna
01 February 2023

9 months ago

Hi there. I also have Polycythemia Vera. I was diagnosed two years ago. Happy to talk and I would also recommend MPN voice for regular updates and relevant content. I find their Instagram page very helpful.

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