posted by Terry Kav 18 December 2018polycycthemia vera Last reply: 9 months agoIm looking to talk to someone else with polycycthemia vera.Log in or Register to reply 5 comments Comments commented by Irish Cancer Society 20 December 2018 4 years agoI am sorry nobody has replied to you yet but hopefully someone with a polycythaemia vera will get back to you shortly. I am attaching a link to MPN voice a UK web site with information and advice that you hopefully will find useful : http://www.mpnvoice.org.uk/about-mpns/questions-about-mpns/polycythaemia-vera.aspx Also you can call us on the Nurseline on 1800 200 700, we would be happy to speak to you.Kind RegardsCancer Nurse | Irish Cancer Society.Cancer Nurseline Freephone 1800 200 700 commented by Stephen D 18 February 2022 1 year agoSorry to reply to your post so long after you made it but I was just diagnosed with PV and am in the process of beginning treatment. Would be more than willing for a chat if you are still active on this. Kind Regards. commented by Gavin 02 May 2022 1 year agoHi Terry,Not sure if I can assist you in any way, however I've been diagnosed with PV during the pandemic. If you want to reach out please do. commented by Trevor Ryan 18 September 2022 1 year agoHi im trevor diagnosed few months ago but the doctors say I've probly had pv 8 years now im up for a chat if you like commented by Shauna 01 February 2023 9 months agoHi there. I also have Polycythemia Vera. I was diagnosed two years ago. Happy to talk and I would also recommend MPN voice for regular updates and relevant content. I find their Instagram page very helpful.