Im looking to talk to someone else with polycycthemia vera.
I am sorry nobody has replied to you yet but hopefully someone with a polycythaemia vera will get back to you shortly. I am attaching a link to MPN voice a UK web site with information and advice that you hopefully will find useful : http://www.mpnvoice.org.uk/about-mpns/questions-about-mpns/polycythaemia-vera.aspx
Also you can call us on the Nurseline on 1800 200 700, we would be happy to speak to you.
Cancer Nurse | Irish Cancer Society.
Cancer Nurseline Freephone 1800 200 700