Cervical cancer
posted by YvonneS
05 October 2021

Leaking from Pelvis following Lympnode removal during Radical Hysterectomy

Last reply: 1 year ago

Hi All
I was diagnosed with Adenocarcinoma in June and had a Radical Hysterectomy, during the surgery Lympnodes were removed from my pelvis for biopsy. My medical team advised that there may be some leaking from my pelvis and vagina following this procedure because my body will be trying to redirect the lymph fluid. This did happen, it started 3 weeks after surgery and lasted for 7 weeks, I'm a poster lady for Tena right now, both pads and incontinence pants. The leaking stopped all of a sudden with horrendous pain 3 weeks ago and then I experienced a discharge from my back passage for a week, again thankfully this stopped and all was going well until yesterday. The leaking has started again, every time I stand up the fluid runs out of me, I have worn 5 pads between 10pm last night and 9am this morning. A lot of info but I'm wondering has anyone else experienced this leaking following removal of Lymph nodes. I'm in for a CT scan tomorrow as I had a serious UTI in the first 4 weeks since surgery and the Medical team want to ensure there is nothing else going on, this is peace of mind but the leaking and wearing of incontinence pants and pads is soul destroying.

I don't know anyone else who has had to have a Radical Hysterectomy due to Cervical Cancer so can't find any information regarding leaking of fluid. I'm 14 weeks post surgery so feel that my recovery hasn't really started yet, 1 step forward and 10 steps back. The leaking may not be common post surgery so any information would be appreciated. Thanks in advance.

2 comments

Comments

commented by IrishHiker
05 October 2021

1 year ago

Did you tell your doctor all of this? Sounds like too much leakage going on this far out from you having the procedure.

commented by YvonneS
06 October 2021

1 year ago

Hi IrishHiker
I most certainly did, they are well aware of it but I'm trying to figure out if anyone else had similar issues, they can't give a definitive answer to when it will stop or how long it will last because it's my lymp system trying to redirect the fluid somewhere, I'm just fed up with it but I'll get there, I've an awful lot to be thankful for. Had a CT scan this morning so fingers crossed that might answer it.

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