posted by Deise
14 March 2015
lobular cancer follow up
Last reply:
15 March 2015 10:46
Hi everybody
I had lobular cancer and was initially told I would need to have an mri rather than mammogram every year as it is more accurate for lobular cancer. However now I'm only having a mammogram. If anybody could tell me how they are followed up having had lobular cancer I would be very grateful. 
Comments
commented by Deise
15 March 2015
15 March 2015 10:46
Hi lindy lu
Thank you for your reply. I think I will ask again next time I have an appointment.
Xx
I had IDC but one of my Cancer pals had lobular - she has annual mamo and annual MRI. She has a scan scheduled every 6 months. That said at her last onc appointment, there was talk about doing away with MRI. She had a reoccurrence last year, after 7 years, that was picked up super early on an MRI. She will fight for continued MRI. She is lucky that she has private health insurance - don't know if it makes any difference.
Some hospitals just don't scan. I am a Beaumont girl and they only scan if there are symptoms! Did you ask/ demand an MRI?
Hopefully someone with lobular can share their follow up scan protocol.
Lindylu