Prostate cancer
posted by Irish Cancer Society
28 April 2009

Support for those with prostate cancer

Last reply: 06 November 2009 12:41

Men Against Cancer (MAC) is a support group for men with prostate cancer. Nobody knows like somebody who has been through it.. if you would like to share in the knowledge and experience of a man who has been through a prostate cancer diagnosis and treatment, please contact the nurses on the prostate cancer information service at free phone: 1800 380 380. They will put you in touch with a volunteer.

11 comments

Comments

commented by Jim
26 June 2009

26 June 2009 08:16

Hello,, I have just registered with Irish Cancer.ie. Not quite sure how to operate this site. I have just been diagnosed with prostate cancer psa 20 gleeson 7 is there any one with the same approx readings and what treatment they intend to use or have used.....
Any info gladly received
Jim

[quote="moderator1"]Men Against Cancer (MAC) is a support group for men with prostate cancer. Nobody knows like somebody who has been through it.. if you would like to share in the knowledge and experience of a man who has been through a prostate cancer diagnosis and treatment, please contact the nurses on the prostate cancer information service at free phone: 1800 380 380. They will put you in touch with a volunteer.[/quote]

commented by Irish Cancer Society
30 June 2009

30 June 2009 10:53

Dear Jim,
Many thanks for your message. If you would like to give us a buzz on free phone: 1800 200 700 we will put you in touch with a man who has had a similar diagnosis.
Kind regards,
Prostate cancer information nurse.

commented by joes
12 August 2009

12 August 2009 15:32

Hello,

I have prostate cancer and am undergoing treatment. My son sent me this spoof commercial about a prostatic stent which helps you urinate. I have a bag at the moment and this really made me laugh, it brightened my day, it could yours too. The device is real by the way. http://www.youtube.com/watch?v=W-jB9RDN-mE
Please share.
Joe

commented by ptrkehoe
24 August 2009

24 August 2009 15:22

I was diganosed with prostate cancer in Janurary i am 57
After much discussion with my GP and consultant i decided to have it removed
This was done i St James Dubliin in April and i reciently returned to work
I will be having radio therapy shortly as a precaution but so far all is going well and i have no regrets in having the operation
Hope you find this helpful.

commented by dochara
09 September 2009

09 September 2009 09:32

Halfway through my radiation therapy and I thought it might be worthwhile to share experiences with other victims of prostate cancer. What a disappointment! So few active members and so little to read. Is it that the stereotypical Irish male that we so often complain about is actually real?!

Hear no evil, speak no evil, see no evil - as the Irish tend to say, "Ah shure it'll be alright".

What a waste of an excellent facility.

commented by ptrkehoe
14 September 2009

14 September 2009 21:20

Good luck with your threapy i hope all goes well for you

commented by procan
27 October 2009

27 October 2009 13:21

I believe it is now incumbent on all private health insurance companies to contact their male clientele over 50 years of age and notify them by mail of the high prevalence of this cancer which-like many others-often reveals no symptoms until it is incurably advanced.
They should be urged to obtain a simple annual PSA blood test which costs about 40 Euros in their nearest private hospital.
the obstacles to getting this test should be minimized.
They should be able to make a phone call and get a note left in their local GP surgery for the hospital, on request, without the inconvenience of having to queue up or pay 50 Euros more for the privilege.
I believe this inexpensive mail shot, with a strongly worded warning, would save countless misery and many lives.
As a prostate cancer victim who was diagnosed late (two years ago) and only by a chance visit to my local surgery (in relation to a problem my spouse was suffering ) I have about two years left to live,
I have written to my own Insurance provider asking them to consider this type of campaign.
I know there have been expensive TV campaigns recently, but I believe a personal letter makes a bigger impression when addressed to an individual; and would ensure that many people who rarely watch TV would be alerted.

commented by Gene
04 November 2009

04 November 2009 15:04

Dear All,
My husband was diagnosed with advanced prostate cancer one year ago. Early 50's only symptom- frequent urination. His treatment has been radiation and double hormone blockade. I am wondering if there are any support groups for the 2 of us in Dublin- just to get together and talk about the place where we find ourselves. I know about MAC and will see about that for my husband, however it would be great to hookup with some other couples.
Good Wishes to all of you who are fighting this terrible disease.

commented by Marathon Man
05 November 2009

05 November 2009 09:26

Another good support group is ARC House in Eccles Street. http://www.arccancersupport.ie/ I haven been to the Dublin centre, but found the Cork ARC good.

commented by Gene
05 November 2009

05 November 2009 10:21

Thank you for the suggestion. I emailed MAC however the reply was they didn't have anyone with advanced PCa available.

Good Luck with your good PSA score.

commented by Gene
06 November 2009

06 November 2009 12:41

Dear All,
I would like to share a website from Joel Nowack that I have found very helpful on this journey. Joel is an advocate for those with PCa.
http://advancedprostatecancer.net/ i have a few others that I check in with now and then if anyone is interested.

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