Questions on luekemia

December 13, 2010 - 09:41

I have recently had a bone marrow transplant 8 months ago after being diagnosed with luekemia only 15 months ago. I am willing to just answer any questions that anyone may have regarding either.

December 13, 2010 - 12:54

transplant21":658abnj3 wrote:
I have recently had a bone marrow transplant 8 months ago after being diagnosed with luekemia only 15 months ago. I am willing to just answer any questions that anyone may have regarding either.

I hope you are doin well,I also had a stemcell transplant in Feb of this year for NHL,I was just wondering did you have to recieve a dli after a few mts,or as they call it "a top up or mini transplant" and did you develop any gvhd? thanks ..

December 13, 2010 - 14:39

I am doing great now yes. hope ur doing well! No i had "ALL" I had a bone marrow tranplant as oppose to stem cell. So i had no top ups of any kind. I did have 3 lp's due to the cancer being in my spinal fluid

ye i devloped a mild gvh of the skin initially and they put me on steroids, it went and they reduced the steroids and again i got skin gvh and a little bit of gut gvh(nausea only)

now at the moment i am again back on steroids for some very mild skin gvh and hopefully i can come off them thi time but its a small price to pay and it manageable.

have u got gvh? when was ur transplant?

December 13, 2010 - 18:48

transplant21":1qoocniu wrote:
I am doing great now yes. hope ur doing well! No i had "ALL" I had a bone marrow tranplant as oppose to stem cell. So i had no top ups of any kind. I did have 3 lp's due to the cancer being in my spinal fluid

ye i devloped a mild gvh of the skin initially and they put me on steroids, it went and they reduced the steroids and again i got skin gvh and a little bit of gut gvh(nausea only)

now at the moment i am again back on steroids for some very mild skin gvh and hopefully i can come off them thi time but its a small price to pay and it manageable.

have u got gvh? when was ur transplant?

Thanks for your reply,I had my transplant in feb this year after a year of chemo which didn't really help,I had a lobectomy of the right lung ten days before the transplant,I never got any gvh which they were a bit concerned about because its good to get a small bit of it,I didn't have to go on steroid's after the bone marrow transplant ,I was glad in a way because I hate them,Its a long struggle isin't it but hopefully we will weather the storm,really glad your doin well.

December 14, 2010 - 04:01

Ye it's a long road but I bet we are a lot better off now than we were last year. I spent Xmas in hospital and had a date in feb for my transplant but that was moved to march so then I moved to James for the transplant after 7 months of chemo and now I only go once every two weeks for tacro levels and a review. It'd be less if I didn't have gvh and I miss a good bit of college to it but better now than I was this time last year. Were the stem cells ur own?

December 14, 2010 - 16:33

transplant21":195k8h8n wrote:
Ye it's a long road but I bet we are a lot better off now than we were last year. I spent Xmas in hospital and had a date in feb for my transplant but that was moved to march so then I moved to James for the transplant after 7 months of chemo and now I only go once every two weeks for tacro levels and a review. It'd be less if I didn't have gvh and I miss a good bit of college to it but better now than I was this time last year. Were the stem cells ur own?

Ya,true for you ,much better than this time last year ,I was in hospital this time last year and didnt get home until may ,I recieved the cells from my brother who was a perfect match.

St James's is fantastic,they really keep on top of things and move very fast if there is a problem, the only drawback is the long day every monday when I go up,it wear's me out.

I hope you continue to keep well and have a lovely xmas and a happy new year.