Hi, my name is Aoife and I was diagnosed with APML on August 15th 2010. It's a pretty rare form of leukaemia (a subset of AML) so if anyone has any questions I can answer or help with just let me know.
I've been through 4 doses of chemo on Burkitt's Ward in St. James' and am about to move into the maintenance programme as an out patient. I was on the Spanish Protocol, a new version of which (LPA2005) was published in June of last year.
I'm 32, irish and I've tolerated things well so far, thankfully, and have been in molecular remission since the first (induction) round.
anyway, I know only a handful of folk get this each year so first hand info can be thin on the ground (I certainly found it to be) so if you, or a relative/friend have been diagnosed and you have queries or want to share experiences I reckon this might be a good place to do it. I've written a couple of blogs about my experience too, which you can read here>