GBM patients intereseted in a discussion ?
Hi I'm a male brain tumour patient since 2007.I am a GBM patient since May2011, I've had 4 crainiotomys to date, conventional fractionated RT in 2009,sterotactic Radiosurgery in Nov 2011. I attempted chemotherapy(Temodal) in June 2011 and I have just started a re attempt with it again this week, in the hope my blood results are better to allow me to stay on it for more than 1 cycle this time. I have had a reoccurence since the STRS in Nov2011 and am also suffering from what my consultants are suggesting is Radiation necrosis damage, My left sides upper and lower limb movement is getting drastically worse week by week since the STRS.
just wondering if there are any GBM patients or carers out there who have similar stories or had similar experiences they might be willing to share.