Hi all, I'm taking the plunge and bringing up the topic of stoma care. I had an operation for bowel cancer which invaded the pelvic area requiring the removal of my womb ovaries part of a kidney, part of the large and small intestine as well. I am on a course of chemo therapy at present and will have radium as well.
While the surgeon and oncologist have not given any prognosis regarding life expectancy they both said that even advance cancers now respond very well to treatment and I know they are looking at my case in a positive way, as I also am.
I have a stoma and received help from specialist stoma nurses while in hospital - I adjusted very quickly to to idea of it and became proficient in looking after my personal hygene etc.
So what's my point? Well since coming home I realise that its quite a job getting supplies of bags, and all the sprays and things to go with it. At first the hospital put me in touch with a company who supplied this stuff - I then had to get a prescription from my doctor and send it to them along with a cheque for prescription charges. I ended up with too much of one thing and not enough of another. So I changed to getting supplies from my local chemist this required that I go in and let them know reference codes for each item so they could order in. On one particular day I spent an hour waiting in the doctors in order to get a prescription for supplies.
Another time I ordered a repeat prescription on a friday and was told on monday I didn't give them enough time and to come back.
In my opinionall this beaurocracy around these prescriptions is a waste of time and energy on my part and on the part of the G.P's as well (who by the way has been very supportive of me during my illness - no complaints there).
Why are they not availabel free to bowel cancer patients at a point of distribution (like the chemist)? Its the only way we have to go to the toilet - no one else has to jump through these hoops to answer the call of nature.
After all I only use what I need to use - I dont think there is a call for them on the black market so I wouldn't see why I should require any more than is necessary - what would you be doing with them anyway?
What does anyone else think? Am I making a mountain out of a molehill?