Ocular Melanoma
Hello,
I've recently been diagnosed with ocular melanoma, I know this is a more rare type of cancer and I'm struggling to find much support for this type. I'm currently being treated, I'm in recovery from my second surgery at the moment and I wanted to ask if anyone has been through eye cancer and has experience or could point me in the direction for help with dealing with it please.
Thank you
Comments
Hi Kelly, so sorry to hear about your recent diagnosis, I was diagnosed April 23 and had surgery in Luke’s Easter week. My tumour has shrank by just over half way which they are happy with but my sight isn’t great it comes and goes , I did a story with the Irish cancer society last July to raise awareness because it is such a rare cancer, my name etc is on the post so feel free to find me on social media and contact me if you like? https://www.cancer.ie/about-us/news/it-was-a-shock-to-the-system-and-st…
I will send you a few support groups I am in
Dear KellyMac
Thank you for posting your message on our online forum. I do hope you will hear from others who have been affected by ocular melanoma. It is so much harder having a cancer diagnosis that is rare.
While waiting for a response you may find this link helpful: https://www.ocumelirl.org/links/europe
However our cancer nurses would be happy to speak to you on our support line. We may be able to offer suggestions on getting support and/or counselling if you think it may help.
You can phone us to discuss this further. Our phone number is 1800 200 700. We are all cancer nurses here Mon-Fri 9-5pm.
Kind regards
Cancer Nurse