IPCOR - Irish Prostate Cancer Outcomes Research
- Do Irish men, who are newly diagnosed with prostate cancer, see big changes in their quality of life during and after treatment?
- How does prostate cancer care in Ireland compare internationally?
These are just some of the questions being addressed in a €1.75 million collaborative cancer research initiative of the Irish Cancer Society and Movember Foundation that will ultimately lead to improved care and outcomes in prostate cancer care in Ireland.
What is IPCOR?
The Irish Prostate Cancer Outcomes Research (IPCOR) was established in 2014 to assess the experience of prostate cancer patients and their quality of life and also to benchmark the quality of prostate cancer care in Ireland against international experience.
The IPCOR study involves the National Cancer Registry Ireland, the HRB Clinical Research Facility in Galway, the National Cancer Control Programme and major academic institutions represented by Molecular Medicine Ireland.
Through this initiative, researchers will, for the first time, collect data on clinical and patient-reported outcomes of hundreds of men who have been newly diagnosed with prostate cancer across 17 Irish hospitals over a five-year period. Participants will be asked about their experience of prostate cancer care, their physical and psychological wellbeing, and their quality of life before, during, and after treatment.
Why is IPCOR collecting data?
Using this information, IPCOR will establish a registry that will better inform future care delivery and our knowledge of the disease, which sees more than 3,000 new cases being diagnosed in Ireland every year.
Ultimately the IPCOR registry will improve patient experiences and maximise quality of life for men diagnosed with prostate cancer in Ireland by informing doctors, hospitals and policymakers about future healthcare decisions and also promoting equal access to services and improvements in care nationally.
To find out more about how the IPCOR study is progressing read the first annual report published in September 2015. For further information about this collaborative cancer research initiative visit the IPCOR website.
IPCOR has recently published an article in the Spring Edition of Cancer Professional which outlines the establishment of the registry. Read the article.
IPCOR is supported by: