Cancer Support Services Affiliation Updates May 2014

Cancer Support Services Affiliation Updates

May 2014        

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Dear Friends,

The Trees

The trees are coming into leaf
Like something almost being said;
The recent buds relax and spread,
Their greenness is a kind of grief.

Is it that they are born again
And we grow old? No, they die too,
Their yearly trick of looking new
Is written down in rings of grain.

Yet still the unresting castles thresh
In fullgrown thickness every May.
Last year is dead, they seem to say,
Begin afresh, afresh, afresh."

-  Philip Larkin

Congratulations


To the team at Cara Cancer Support Centre on the opening of their premises in Dundalk! We wish them all the very best. 

Training Opportunities

Calling for facilitators for the Irish Cancer Society's Psycho-educative Programme for men who have had a prostate cancer diagnosis

In 2013 the Irish Cancer Society piloted a six week programme for men living with prostate cancer. This programme was run by in six affiliated cancer support centres throughout the country.

The Society is now prepared to provide facilitator training for this programme. If you have a background in facilitation, oncology or psychology and are interested in taking part in this training please email Deirdre Murphy, Patient Support Services Coordinator at dmurphy@irishcancer.ie

Calling for facilitators for The Irish Cancer Society's Living Life Programme for people newly diagnosed with secondary cancer

In 2013 the Irish Cancer Society piloted an eight session psycho-educative course for people living with secondary cancer. This course, which was run in the Irish Cancer Society headquarters in Dublin, was facilitated by Ms Aine Melinn, Senior Clinical Psychologist with expert speakers presenting at each session.

The Society is now prepared to train facilitators to run this programme in their own centres.  If you have a professional background in the area of nursing, oncology or psychology and are interested in interviewing for this course please email Deirdre Murphy, Patient Support Services Coordinator at dmurphy@irishcancer.ie

DATES:

  • Interviews: Irish Cancer Society on Friday 18th of July
  • Training: Irish Cancer Society on Friday 26th and Saturday 27th of September

For further information about these programmes please contact Deirdre Murphy, Patient Support Services Coordinator, on 01 231 0534 or email dmurphy@irishcancer.ie

Strides for Life

The Strides for Life training for walking leaders has been provisionally booked for 17th July at the offices of the Irish Cancer Society.  The training will be delivered by Eimear Cotter, Health Promotion Officer and Marie Murphy, fitness expert and founder of the Marie Murphy METs programme which Strides For Life is based on.

We are delighted with the response that we received for this programme and are looking forward to the next steps in rolling Strides for Life out nationwide!

Professional Development Day for Managers

We are delighted to present a day for managers on Ethical Decision-Making.  This day will look at some of the dilemmas leaders face in the running of their services and managing relationships with the board/committee and how best to address them. 

The day will be facilitated by Ann Clarke from Eustace Patterson Ltd and will take place on Wednesday, 11 June at the LARCC Centre in Mullingar and on Wednesday, 12 November at the Solas Centre in Waterford.

There are a small number of places still available for the June date – for more information, please contact Dorothy on 01 231 0596 or dthomas@irishcancer.ie

Core Skills for Volunteerig in a Cancer Support Service

Registration is now open for the next Core Skills Training programme which will take place in Cootehill, Co Cavan at the Cuan Cancer Support Group.  This programme will  run on Thursdays on 11th, 18th, 25th September and 2nd October.  Please register with Dorothy on 01 231 0596 or dthomas@irishcancer.ie

The final Core Skills Training programme for 2014 will take place in Co Kerry in the autumn. 

Introduction to Governance & Preparing for the Charities Regulator

This highly successful training day will run in Dublin at the offices of the Irish Cancer Society on Saturday, 18th October 2014. Please ensure your board/committee members mark their diaries!

The outline of the day is as follows:

10am – 1pm                              Introduction to Governance

The aim of this workshop is to ensure that those responsible for leading organisations are

equipped with the necessary information and skills for effective governance.

Topics include:

  • Defining Governance
  • Understanding the different roles & responsibilities
  • Distinguishing the boundaries
  • Knowing the legal, moral and financial obligations that relate to good governance
  • The importance of policies and how to go about developing appropriate policies for your organisation

1:30pm – 4:30pm                     Preparing for the Charities Regulator

With the recent appointment of the Interim Charities Regulator against a backdrop of recent scandals in the sector, now is the time to make sure your charity is ready for registration. This course will outline the key functions of the Charities Regulatory Authority (CRA)  and explain how the register will work. Participants will see the website of the Scottish Regulator (OSCR), including their Register, to gain an insight into how the Irish CRA website will look. We will also go through the annual reporting requirements and the obligations and responsibilities of Trustees.

Networking

Cork Lymphoedema Support Group Meeting

The Cork Lymphoedema Support Group will host Dr Mary Paula Colgan, Associate Professor of Vascular Disease, Trinity College Dublin and St. James's Hospital Dublin on Saturday 5th of July 2014. Please RSVP to Mary Ross on 085 126 5876 or lymphoedemacork@hotmail.com.

Save the Date 17th-20th September 2014
 
Who Should Attend:
Health Professionals, Scientists, Cancer clinicians, Clinical nurse specialists, Allied health professionals, Representatives from pharmaceutical companies, Policy makers, Undergraduates & Postgraduates in Science & Medicine
 
Theme: Living with Cancer in the 21st Century
 
Sessions include:
  • State of the art in planning cancer services
  • Lifestyle, Immunology and Metabolism
  • Drug Discovery
  • Cancer & the Environment,
  • Major Therapeutic Advances
  • Emerging Challenges for Childhood Cancer
  • Survivors
  • Circulating Tumour Cells

www.cancerconference.ie

Who Should Attend:
 
Patients, carers, Health Care Professionals, Members of Community Based Cancer Support Services
 
Theme: Living well after cancer
Sessions include:
  • Promoting Behavioural Change after Cancer
  • Late effects of Childhood Cancer
  • Dealing with Lymphoedema
  • Cancer Treatments
  • Learning to Deal with Cancer Related Stress
  • Sexuality and Body Image

www.cancer.ie/nccs

Did you know about…
My Mother has cancer...how will we cope?

Maternal cancer can be one of the most stressful and challenging experiences in the life of any adolescent.

The AMC Study (Adolescent Adjustment to Maternal Cancer) in NUI Galway is working together with adolescents between 14 and 19 years of age and mothers who were diagnosed with any type of cancer in the previous 24 months, to understand the experience of having a mother diagnosed with cancer during this stage of life.

Research has identified that stressful and challenging experiences can be difficult but can also provide skills for coping and adjusting to difficult times in the future. Research with children and young people has shown that parental illness can also be an opportunity for families to grow, learn and change together. Adolescents can acquire a sense of maturity, responsibility and appreciation for important people and issues in their life. Some adolescents may lack support in their environments and may be less able to share their feelings with others and are, therefore, more vulnerable to stressful situations that may lead to short and long term emotional and psychological consequences.

The AMC Programme is an online life skills programme that provides adolescents with useful skills for coping in life. It is made up of 8 sessions that include topics like assertive communication, stress management techniques, coping skills, social support, anger management and listening skills.

The AMC is an international study in collaboration between the School of Psychology, the School of Political Science and Sociology and the Child and Family Research Centre, National University of Ireland Galway ( NUIG ).

The research team are Dr. AnnMarie Groarke, Head of the School of Psychology, NUIG. Professor Pat Dolan, Director of Child and Family Research Centre, NUIG and Ms. Leonor Rodriguez (BA, MA) NUIG

Those interested should contact researcher Leonor Rodriguez Tel 085 887 7718 or email l.rodriguez2@nuigalway.ie or AnnMarie  annmariegroarke@nuigalway.ie

Website:http://amcstudy.wordpress.com/

_____________________________________________________________________

Venue: Vita House
Abbey Street
Roscommon
Mondays, from 7.30 p.m.-10.00p.m. & some Saturdays.

September 2014 – May 2015

For more information, please contact Vita House directly on 090 6625898 or info@vitahouse.org

_____________________________________________________________________

Have you been diagnosed with Myelodysplastic Syndrome (MDS)?

Are you unsure about the future? Would you like more information, advice or support? Would you like to meet other MDS patients?

This new support group is for MDS patients, family members and friends
We aim to start and meet on a regular basis to:

  • bring MDS patients together
  • meet others with similar challenges
  • discuss feelings, share experiences and gather information
  • listen to physician and nurse presentations
  • socialize and have fun!

Please contact: Sinead Mahon

Tel: 086 200 1402

Email mdsireland7@gmail.com

Website:  www.mdsireland.com

Facebook: MDS Ireland Patient Support Group

Irish Cancer Society Important Dates:
DATE Events
May  SunSmart
May 31st World No Tobacco Day
May 31st - June 1st Relay For Life - Donegal
June 11th
 
Professional Development Day for Managers at LARCC For more info or to register, contact Dorothy on 01 231 0596/ dthomas@irishcancer.ie
June 14th & 15th  Relay For Life - Carlow
July 5th & 6th  Relay For Life - Dun Laoghaire
July 19th & 20th  Relay For Life - Kilkenny
August 1st   International Lung Cancer Awareness Day
August 9th & 10th  Relay For Life - Ballyfermot, Dublin
August 16th & 17th Relay For Life - Achill
September 6th & 7th Relay For Life - Kildare 
September 17th &18th  St James’ & Trinity College Cancer Conference
September 19th & 20th  National Conference for Cancer Survivorship
October Breast Cancer Awareness Month
November Movember
November 12th 
 
Professional Development Day for Managers at LARCC  For more info or to register, contact Dorothy on 01 231 0596/ dthomas@irishcancer.ie
Support Service Events
June 5th
Arc Myeloma Support Group meeting. If you would like to join us for a chat and cuppa please contact  Celine at 086-8293264 / celdel51@gmail.com or ring Arc house at 01-7078880 or just come along on the day.
June 11th

 

Brain Tumour Support Group Meeting
7:30pm, St. Luke's Hospital, Rathgar, Dublin 6.
All Welcome
June 20th
 
Launch of the Home to Rome event at the Eist Cancer Support Centre, Carlow. Please contact Elaine on 059 913 9684.
June 28th - July 5th
 
Camino Walk in aid of the Gary Kelly Cancer Support Centre Please contact Ann on 041 980 5100 or 086 387 0277 for more information
July 9th Brain Tumour Support Group Meeting
7:30pm, St. Luke's Hospital, Rathgar, Dublin 6.
All Welcome
Do you have an upcoming event?

Advertise your public meetings, coffee mornings and open houses here! Email the details to Dorothy Thomas at dthomas@irishcancer.ie.

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