The National Cancer Registry Ireland Public Engagement Event

The National Cancer Registry Ireland (NCRI) is a publicly appointed body, established in 1991, to collect and classify information on all cancer cases which occur in Ireland. On 9 October 2019, the NCRI are hosting a public engagement event at the Maryborough Hotel, Douglas, Cork. 

The purpose of this event is to provide information to the public on the role of the NCRI. Specifically, this event will cover research conducted by the NCRI and the discussion of key data issues such as the patient experience.

When: 1.00pm - 4.00pm
Where: Maryborough Hotel, Douglas, Cork
RSVP: Email registration@ncri.ie to register for this event

PROGRAMME

Event chair: Professor Amanda McCann, Chair of Patient Voice in Cancer Research (PVCR)

13.30 – 14.00 Registration

14.00 – 14.25 Welcome and introduction
Professor Kerri Clough, Director of the National Cancer Registry Ireland (NCRI) & Jerome Coffey, Chair of the Board of NCRI

14.25 -14.50 Cancer patient experience/patient advocate
Ramon Whelan, Patient Voice in Cancer Research, the patient experience
Debbie Keatley, Northern Ireland patient representative on “Use My Data”, A UK movement of patients, relatives and carers harnessing the patient voice to build confidence in the use of patient data to save lives and improve outcomes.

14.50 – 15.15 Capturing the cancer patient experience and using data to support service planning & Research
Dr Conan Donnelly, Research Manager, NCRI

15.15 – 15.45 Tea/coffee break

15.45 – 16.00 Summary of recent NCRI reports and findings
Eamonn O’Leary, Cancer Intelligence Statistician, NCRI

16.00 – 16.25 Speaker Panel Q & A session

16.25 – 17.00 Event close