Stage 4 Gals HELP!

Avril, I know how you feel with that too much time on your hands. I have been off work for about 7 weeks now since I got a virus a few weeks ago. I live in the country in Offaly so not too much company here too. I am on daily Letrozole and monthly Zometa. My recent scan shows stable disease. I was diagnosed 23 mths ago and have mets in my spine. At least we have been having some great weather recently and we can get out and about.

Evelyn,
Great to hear from you. Glad your scan brought good news
I have spine mets also. Have scan coming up in June so hope it will be o.k.
Always go into overdrive as scan approaches. I am an anxious Molly.
I am sorry to hear you got a virus as I remember from previous posts that you were working part time.
I will have to start volunteering as find it hard not to let illness consume each waking no matter how busy I am.
Hope all those kids activities going well!
Avril

Strange coincidence.I too was diagnosed Stage $ 23 months ago also.

Hi Avril,
Any news on your scans? I'm keeping my fingers crossed for you. It's so nervewracking. What scans are you having? I have a ct every three months and bone scan every six mths. Life is lived in 3 mth intervals, I've been on zometa, femera and faslodex for the past year. So far things seem to be stable. I was on taxol for a couple of years before that and am finding femara and faslodex much easier on the system. Having said that, I still spend most of the day on the couch, pole-axed. It's sooo frustrating to have so little energy especially in this lovely weather. The mind, of course, is a different matter, and it goes round and round, waiting for the other shoe to drop, worrying about the family, scared of dying, etc. etc.
Take care, Avril. Hugs x

Hi all,just checking in!
Feeling low at the moment. ...chemos keep stopping working after few months and think I'm running outof options. Too afraid to ask how many are left! 4 and half years since re diagnosis and hoping for loss more. Prayers please!

I totally know where you are coming from.
Nearly had a meltdown waiting for scan results.Oncologist said things stable at the minute.CT every 6 months but will be scanned if I have symptoms. Am on Zometa and Faslodex also but after this month Zometa every six months instead of monthly.
I too was on weekly Taxol when first diagnosed with recurrence and found it tough.The headspace is the real problem-I just have had to start antidepressant meds. and also Zanex as anxiety was totally out of control. Energy usually ok but that means taking things very easy-frustrating as wiped out if I do anything remotely different.I think we have to be easy on ourselves.

Hi Lemrac,
Sorry to hear you are feeling so down. I am sure there are more options/combinations.
I too never ask what next but my original oncologist,not one to spare one's feelings claimed that each year is bringing a new drug. I am not great for the prayers[I once was and so was mad when recurrence happened] but I will pray for you and for us all. Your previous messages were such a help to me when I was totally down. Hang on in there.